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| 2005 |
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Born in Alabama on March 24, 2005. Nine week early from his due date of May 26th. |
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| Joshua's Journey |
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It was the end of December of 2004 when I had my first sonogram. They told Mike, my husband, and I that they were setting me up for a pinpoint sonogram at UAB. That the baby's bladder was bulging on one side. The specialist from UAB said that his urethra had some kind of blockage or that it did not develop right and the urine could not exit the bladder. The doctor said he was hoping we had caught it in enough time. If not the baby would be born in renal failer. In two weeks we went from being hopeful to making a life and death decision.
We was told by the specialists that we needed to terminate the pregnancy. But we belive that was and is up to GOD, not us.
The next week Joshua was named while having his first surgery while in uterine. A shunt was placed from his bladder to the outside on his abdomen in hopes to relieve his bladder and maybe save some kidney function. But we knew we were in for the long haul. We were going to have many surgeries, dialysis and then a kidney transplant.
On Monday, March 20th. I when in to labor. The doctors were able to stop it twice before Josh decide he was ready. and on March 24th I had emergency c-section. He was nine weeks early. He not only had preemie lungs but also pulmonary hypoplasia ( really bad lungs) because of the lack of amniotic fluid, which mainly consists of urine that he was able to put out. Of course he was in the NICU at UAB. It was six days before he was stable enough too be moved to Children’s Hospital. Were he was in the NICU also.
April His second surgery, closed a valve to his heart that is suppose to close automatically.
April His third, forth, and fifth surgery, placed his central line for hemodialysis, taking out the shunt, and a vestacostomy.
May Is when they started dialysis.
May 27th His sixth surgery, put in a peritoneal dialysis catheter. This is the dialysis we could do at home.
July 25th His seventh surgery, removed a piece of fat that was clotting the peritoneal catheter.
Aug.13th Moved to Special Care because he had the flu.
Aug.19th Moved to a room, to get ready to come home.
Aug.20th His baptism was held at the chapel in the hospital.
Sep.5th We found out that he was not digesting properly. He was a very sick boy.
Sep.9th He was moved to Special Care so the nurse could watch him closer. While they were getting him settled he coded, then crashed.
They put him on a ventilator and moved him to PICU. That was one of my worst days every. No words ever could describe the feeling I went though watching them working on him and trying to save him. He looked so bad; we did not think he would make it.
Oct.12th He was moved to a room again. He was doing O.K. But the doctors talked to us about him having some neurological problems from him crashing.
Oct. 20th His eight and ninth surgery was to reposition his main line and to put in a GJ tube for feeding. He stayed in PICU because he was having a hard time coming off the ventilator.
Oct.21st He went back to a room
Oct.24th He had to go back to PICU because of GI problems and pancreatic.
Nov.16th He has infection in his peritoneal dialysis.
Nov.18th Mike and I had to decide about another surgery. The Doctors told us if we chose to have it, then he would not be able the get a kidney. We chose not to put him though any more pain. When the outcome was going to be the same.
Nov.21th Joshua layd in my arms with his daddy right besid us rubin he sweet head, Just what Josh loved. He closed his little eyes and woke up in God's arms. |
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| 2005 |
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Passed away on November 21, 2005 . |
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